Have you ever heard that saying… In every jest there’s an element of truth? I’ve teased for years that if Trevy ever came off his seizure meds he’d be off the hook with energy and mischief. It was a joke. Kinda. Sorta. The reality is…Trevy is a handful to manage ON three seizure medications. Medications which can and do inhibit energy and creativity. It didn’t require much imagination to visualize what would happen if we ever deleted a pill or two. My mental image is Donnie from The Wild Thornberry’s. On steroids. I had no doubt there would potentially be a trade off. Cognition for him. More work for me! Even knowing that, we decided to slow wean one of his meds. Topomax. The effects of this wean have been nothing short of AH-mazing! In both good and not so good ways. Trevor’s speech has positively exploded. Like, suddenly structuring sentences i...
Our family's journey with catastrophic epilepsy, homeschooling, and unconditional love.