happy being trevy

I love so much about this picture. The happy glow of the sun. The sparkle in his eyes. The cheeky in his smile. The fact that he actually posed. Like, stood still for more than two seconds and posed. The crooked pants. A subtle hint that he recently visited the potty and pulled his pants up by himself. The orange shoe laces. The Stitch shirt. A Halloween costume made by a Trevy fan. The hemiparesis curl of his right hand and arm. A reminder of all he has been through. Has overcome. The way his chin is lifted. So proud of his accomplishment. And the blocks. Stacked neatly from biggest to smallest. In a giant tower of sequencing. A tower of miracles. Trevy struggles with sequencing. It is not his thang. Has never been his thang. He’s been working at stacking these blocks since his Early Intervention days! And if I’m totally honest…there were many times I secretly thought he’d never get it. I love this picture so much because it captured ...

    He’s easy to love right now. But I mean, seriously.  Look at that goofy face. Those sparkly eyes. It has crossed my mind that he’s so loveable in large part because he’s so stinkin’ adorable. But what happens when, like kids generally do, he loses the cute factor. Will he still be loveable. Will people still smile at his antics. At him . Will they still light up when he comes in the room, because his super power is making the world around him glow with joy. Most of the time .   These are questions that swirl around my heart and mind.   Yesterday I took the big kids for impromptu hair cuts. Gotta love Fantastic Sam’s. It’s quick and easy on the wallet.   I couldn’t help but notice her sitting in the chair. Something about the way she held her shoulders. The way she moved her hands. I knew quickly that though her hair was gray…her mind was young. Young, because at some point along the way it had stopped maturing. If I had to guess I’d say she was...