Skip to main content

the perfect recipe

The Ingredients




  • 1 (1/2 hr. tardy) occupational therapist session

  • 1 physical therapy workout

  • EI case manager too **optional**

  • 1 missed nap

  • 4 hours of serious melt down by normally sweet daughter

  • 3 hours baseball camp

  • 1 barely remembered well-visit

  • 5 re-hashing's of Trevor's medical history with various specialists/doctors

  • 1 stressful moment explaining why you're choosing to wait on vaccinations

  • 1 teething baby

  • 3 phone calls to schedule various tests/appointments

  • A full day of sibling squabbling


Blend all ingredients randomly throughout your day & there you'll have it! The perfect recipe for a stressed out day! And a migraine for dessert!

Labels:

Comments

Molli Salzman said…
Danielle,
That stinks when there is all of that going on in one day. My oldest son Jack needed an eye exam this year, so picture me, him, Charlie, and my 3 year old Ben. All in a small doctors office. One VERY rude eye guy. Temper tantrums and Charlie also manages to poop his pants! I am sure they will welcome us back next time with open arms!!
I hope you got answers on from his EI team. I go today for Charlie's 9 months checkup--he turned 10 months old on June 30th so we are a little behind. Anyways, I KNOW that I am not getting him shots, I need to get my speech prepared. I mean, my doctor has seen 1 baby in 15 years between 3 doctor's patients. I sit in the waiting room and see that a specific vaccine can cause seizures. After these 3 months, I am sure I am not taking a chance. My OT said if she were Charlie's mommy, she would wait until after he is 2 to start again. I agree, I am not against them, but I want them spread apart and safe, you know what I mean? Sorry for the rant.

Take care,
Molli
July 9, 2008 at 4:34 AM
Danielle said…
Molli - I was laughing about your little story...and SO glad I'm not the only one havin' those kinda days!

Rant away, sweetie! Cause I am SO with you...especially on the vax issue. The well-visit yesterday finally prompted me to look at the vax friendly doctor list available on Dr. Sear's website. I called the one closest to us...and she was amazing! She said she only gives the vaxes required by the public school...and only administers them seperately. Trev's pedi told me yesterday that it's impossible to find them seperated! Grrrrrr... Anyway...I would recommend finding a vax friendly doctor in your area. Saves the head-ache of explaining & fighting about the whys & whens...

It was my own fault about all the appointments! BUT...we had a really productive visit with the OT! In fact, it was the best ever! She agreed Trev needs therapy twice a month...as opposed to every other month. Plus, she gave us lots of great ideas...a real plan. PT wasn't great but we're all in a holding pattern until Trev sees Dr. Ortho in two weeks.

I still have a dull throb...I really need to take Alieve!

...danielle
July 9, 2008 at 5:47 AM
JSmith5780 said…
Molli and Danielle- I am sorry you are having such concerns with the vax issue. If it eases your mind at all, we had been through MOST of Austin's vaxes, before his IS even started, without incident. The only vax that came after that we had to stress about was the DTaP...which we got as a DT.

Don't let them tell you they CAN'T get the vaxes, they just don't want to because they cost so much more. Keep in mind you may need special insurance approval to get them seperated.

Hope you are both fairing better today!

Check out my blog for an EEG update!
July 9, 2008 at 6:08 AM
Molli Salzman said…
"I mean, my doctor has seen 1 baby in 15 years between 3 doctor's patients. I sit in the waiting room and see that a specific vaccine can cause seizures."

Sorry, that part of my post was a little confusing after reading it again. My doctor has only seen 1 other baby besides Charlie with IS and she was over 1 year old. Last time I was at the pediatricians, in the waiting room, I was reading their literature and it was discussing how certain vaccines can cause seizures, that is what I meant. I mean, after going through all of this, WHY would I do anything but wait?! Sorry, it was early when I did the first post.

Take care,
Molli
July 9, 2008 at 6:38 AM
Danielle said…
Jen - I'm only moving forward with the vaccines required by the public schools...and I found a doctor relatively close that only administers them seperatly. So it is possible! I knew it was...I just hadn't done my own research until yesterday. I'm in no way anti-vax...probably has something to do with living in Africa when there was a measles outbreak! But I want to move on a more *relaxed* schedule...

btw...I'm SO happy Austin's EEG report was happy! And I'm SO angry at the run-a-round you went through! Grrrrrrrr...

Molli - Trev's 1st pedi is the same way. Trevor is his 1st IS case ever...in 20 years of practice. And even before Trev's dx we had had *the vaccine* talks. He's VERY pro-vaccine. Thinks those who choose not to are looney toons. So I already knew we would butt heads. I was SO mad when he told me to look at CHOPs website if I had questions...I'm not THAT naive! I know CHOP is pro-vaccine! I know all their info would have that slant! Soooo...anyway...that's when I decided to switch pedis.
Anyway...I'm just sayin' I understand being skeptical of a doctor that doesn't have the IS experience! I know I am!

...danielle
July 9, 2008 at 8:25 AM
Mama Skates said…
oh hun, so sorry....i really don't know how u do it all!

xoxox,
sharon
July 9, 2008 at 11:42 AM
Sophie's Story by Elaine said…
Ugggh...I hate those days!!! So glad it's over.
July 9, 2008 at 10:02 PM
Shanna Grimes said…
Hate to laugh, but I did get a kick out of this post. It sounds just like something I would say.

Sorry you had a bad day :( Hope tomorrow is a better one for you all.
July 9, 2008 at 11:43 PM
Danielle said…
Elaine - me too!

Shanna - that's SO funny cause I was thinking the same thing! Sounded like you...suppose you're rubbin' off on me a bit! ;o)

...danielle
July 10, 2008 at 4:41 PM
Post a Comment

Popular posts from this blog

I cried when I got the news

I felt like such a heel not going with Trevy for his first post hemi EEG. Yeeeeeees...Jonathan went with him. Yeeeeeees...he's just as good as me. But still! He's my baby! I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations? Cause Trevy's been back for hours now. And I'm STILL waiting! Anyway... Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds. Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall. And I cried when he told me... that for the first time in almost two years. For the first time since this whole crazy mess began. my baby's EEG is completely normal! Side Note: It's super fun to sob in front of Japanese men and watch them squirm When I kept repeati...
22 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more

it's like being asked to the prom...

only MUCH MUCH bigger! I had noticed (yes...I stalk my site meter!) that a government ISP had logged onto Trevor's blog. Whoever it was had spent a good deal of time hanging out too. Followed a few minutes later by a government ISP...hailing from Washington. As in DC! My eyebrow raised. It was just kinda odd. Note-able odd. You know? Anyway...later that day (last week) I was folding laundry & thinking my crazy insane thoughts. Along these lines... I hope I'm not saying anything I shouldn't! Maybe I made somebody mad? Wait a minute! I live in America! I'm allowed to say anything I want! Aren't I???? A shout from the other room interrupted my thoughts before I had a chance to further mull. It was Jonathan. I had just received an email. **Side note...he's always doing that! Reading my emails! Sheesh!*** The said email was from a US Senator's aide! Asking if he could speak with me. Little ole' hardly has time to splash some make-up on ...
16 comments
Read more