Skip to main content

ride the rage wave...

One of the side effects of ACTH is extreme hunger. I don't think I've heard of even one child who has escaped this one...

Trevor...is already feeling the pangs. And was on an all day mission of grabbing anything edible within reach...

including Bristel's sippy cup.

Bristel is not inclined to share...and snatched it back quickly.

Now typically Trevy would fuss for a sec...and then move on to something else. He's better at the sharing than she.

But today was different. Today was ACTH day.

And so there he stood...24 lbs of steroid fury...sucked in a big breath...and proceeded to howl at the top of his lungs like a mini-Sasquatch!

again & again & again & again...

I'm not sure laughing was such a good idea. But the rest of us did anyway...

Comments

Mrs. M said…
lol...you've got to find moments of laughter in this wild world or it's beyond trying.
Poor little man! The outrage! Not sharing! Siblings!:)
Poor little guy. i can just picture him standing there...almost "hulk" like screaming his mighty roar. Bless his heart. I probably would've found the humor in it too. Connor's hunger wasn't too terribly bad thankfully, but my word he looked like a big puff-a-lump when he was done!
Danielle said…
the laughing was the best part. And once he realized we thought it was funny...he just kept roaring...with a twinkle in his eye! lol Never has the hulk been cuter!

and monica...trevy's little cheeks are already puffing up! I've been taking daily pics...just haven't had a chance to post them yet. Maybe I'll post them after in one big beginning to end post?

...danielle
Shanna Grimes said…
I can just picture him beating on the table, singing for his supper.

Poor baby puffy cheeks already :(

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...

it ain't sexy livin' on an island...

Especially when you have to cross bridges to get ANYWHERE. Very LARGE bridges. The crests of which I inevitably get stuck at. Speaking of...why is it that at the tippity tops of our bridges...the railings always open up? To reveal an eagle's eye view of the white capped depths below? I HATE that. And sure enough...in route to Dr. Pedi yesterday...they must have seen me coming cause traffic ground to a halt at the top of the Mt. Hope Bridge. Where I felt less than Hope-ish. My palms gushing my nerves onto the steering wheel for a good 15 (felt like forever) minutes. Not just things medical bring out my cowardly lion. Heights do too! Anyway... Grabbed an iced coffee and chocolate cream filled to settle my nerves on the way. And we arrived on time...in one piece. Of course. Dr. Sick-Visit-Pedi breezed in chart in hand. Glanced down. Then at Trevy. Then said... "He has a history of Infantile Spasms?" Surprise and speculation in her voice. We get that a lot. It...