Trevor didn't really do too badly on ACTH last time. He was ravenous. Grumpy...but manage ably so.
Really...the worst side effect he experienced was high blood pressure. It was elevated enough that he had to take Enalipril for the duration of his treatment.
Anticipating the same this time...I've been hunting down an at home BP unit. Which any CVS carries. Except the pedi kind...of course.
And our insurance...ironically will cover home nurses up the wah-zoo...but not a BP unit. Seriously!
Thanks to another IS mommy I found a little company in Minnesota. Which...as coincidence would have it...happens to be the State that Senator Klobuchar hails from. You remember her right? She chaired the JEC hearing I recently testified before!
But back to the business at hand...
I found this company:
So I called. Not expecting much honestly. I've had one too many frustrating medical conversations to think it would be a breeze. But the young man who answered the phone absolutely made my day! Quite possibly my next few months! He spent hours trying to track down a distributor here in RI. No luck. Except the manual kind. Perhaps I'm being picky here...but seriously...I refuse to give my son an injection AND be expected to manually take his BP! Thankfully I won't have to. Because Pediatric Home Services is selling me one of their units for $82.48! Plus free shipping!
I am so smiling right now!
It's just nice in the midst of all this chaos...to have some sunshine in the mix!