We have been dreading tomorrow for weeks now.
I seriously cannot think of anything more exhausting than over-night in-patient EEGs. In fact...I'm SO zonked just from the thought of the next 48 hours that I've been sitting here staring at the screen. Drooling. Hardly able to will my fingers to type. I wonder how much time I'll waste before clicking publish? If I even make it that far?
Ugh!
So we'll pack our essentials tonight.
Zipper-ed sweat shirts & jamies for Trevy. No over the head garments allowed when one's head is swaddled in cotton...and attatched to gobs of wires & electrodes. Some toys. Because it always takes FOREVER to get hooked up with the hospital's. A couple dvds that'll entertain him for precious mili-seconds. His meds. Cause Vigabatrin's hard to find in-stock! Which btw he's down to just half a tab. One more decrease and we're done for good! Oh...and this time we're bringing his bed. Trevy still sleeps in a pack & play. I'm hoping it makes everything (especially night time) run a bit easier. Trevy is addicted to his own bed...
Comfy clothes...books...munchies...and the laptop for mommy n' daddy. We were thrilled to learn that hospital now has wire-less! That'll entertain mommy & daddy...
We're also prepared to begin our Banzel trial.
Annnnnnnd...
Dr. Neuro sent an email letting me know she would like to go over Trevy's PET scan results in person. Her email was cryptic...Dr. Neuros are short on time...
But if I wasn't reading into things too much...I'm pretty sure she was saying that the abnormal activity (slowing...as she put it) was exclusively in his left temporal & frontal lobes. She was forwarding the scan to Dr. Chugani as well.
Better juice up on coffee. I think I'm gonna need my wits about me!
I seriously cannot think of anything more exhausting than over-night in-patient EEGs. In fact...I'm SO zonked just from the thought of the next 48 hours that I've been sitting here staring at the screen. Drooling. Hardly able to will my fingers to type. I wonder how much time I'll waste before clicking publish? If I even make it that far?
Ugh!
So we'll pack our essentials tonight.
Zipper-ed sweat shirts & jamies for Trevy. No over the head garments allowed when one's head is swaddled in cotton...and attatched to gobs of wires & electrodes. Some toys. Because it always takes FOREVER to get hooked up with the hospital's. A couple dvds that'll entertain him for precious mili-seconds. His meds. Cause Vigabatrin's hard to find in-stock! Which btw he's down to just half a tab. One more decrease and we're done for good! Oh...and this time we're bringing his bed. Trevy still sleeps in a pack & play. I'm hoping it makes everything (especially night time) run a bit easier. Trevy is addicted to his own bed...
Comfy clothes...books...munchies...and the laptop for mommy n' daddy. We were thrilled to learn that hospital now has wire-less! That'll entertain mommy & daddy...
We're also prepared to begin our Banzel trial.
Annnnnnnd...
Dr. Neuro sent an email letting me know she would like to go over Trevy's PET scan results in person. Her email was cryptic...Dr. Neuros are short on time...
But if I wasn't reading into things too much...I'm pretty sure she was saying that the abnormal activity (slowing...as she put it) was exclusively in his left temporal & frontal lobes. She was forwarding the scan to Dr. Chugani as well.
Better juice up on coffee. I think I'm gonna need my wits about me!
Comments
Hopefully taking his own bed works out well. Haylee slept in a pack and play until we bought her her toddler bed when she turned 2. That's what the new little one will be sleeping in also since we can't find the sliders for the front of the crib and Delta no longer carries that model. Of course, the model number isn't checked off on the crib so I can't even order new parts for it. grrrr
xoxox,
sharon
I am confused on one thing though...on your overnight EEG's, do you have to stay awake? We never received that instruction on either of our overnight EEG's, and I am wondering if I am just misunderstanding your situation or if we should have received different instructions.
Ken
Sharon...thanks honey. And ditto!
Ken...this one we're allowed to sleep during. Although it really depends on the data the doctors are trying to retrieve. There was a time we thought Trev was having night seizures only. That was a bear...cause they wanted us to press the button all night long. Not fun! Although sleeping in a hosptial sucks in he sleep depot anyway...
Katie & Dawson's fam...thanks SO much!
Oh...and Jonathan thinks I should do a live blog since we'll be connected! ha...we'll see...
...danielle
..danielle