3.29.2009

already exhausted

We have been dreading tomorrow for weeks now.


I seriously cannot think of anything more exhausting than over-night in-patient EEGs. In fact...I'm SO zonked just from the thought of the next 48 hours that I've been sitting here staring at the screen. Drooling. Hardly able to will my fingers to type. I wonder how much time I'll waste before clicking publish? If I even make it that far?


Ugh!


So we'll pack our essentials tonight.


Zipper-ed sweat shirts & jamies for Trevy. No over the head garments allowed when one's head is swaddled in cotton...and attatched to gobs of wires & electrodes. Some toys. Because it always takes FOREVER to get hooked up with the hospital's. A couple dvds that'll entertain him for precious mili-seconds. His meds. Cause Vigabatrin's hard to find in-stock! Which btw he's down to just half a tab. One more decrease and we're done for good! Oh...and this time we're bringing his bed. Trevy still sleeps in a pack & play. I'm hoping it makes everything (especially night time) run a bit easier. Trevy is addicted to his own bed...


Comfy clothes...books...munchies...and the laptop for mommy n' daddy. We were thrilled to learn that hospital now has wire-less! That'll entertain mommy & daddy...


We're also prepared to begin our Banzel trial.


Annnnnnnd...


Dr. Neuro sent an email letting me know she would like to go over Trevy's PET scan results in person. Her email was cryptic...Dr. Neuros are short on time...


But if I wasn't reading into things too much...I'm pretty sure she was saying that the abnormal activity (slowing...as she put it) was exclusively in his left temporal & frontal lobes. She was forwarding the scan to Dr. Chugani as well.


Better juice up on coffee. I think I'm gonna need my wits about me!

9 comments:

Adesta said...

Will keep you all in my thoughts and prayers that everything goes smooth for Trevy tomorrow.

Hopefully taking his own bed works out well. Haylee slept in a pack and play until we bought her her toddler bed when she turned 2. That's what the new little one will be sleeping in also since we can't find the sliders for the front of the crib and Delta no longer carries that model. Of course, the model number isn't checked off on the crib so I can't even order new parts for it. grrrr

~Mama Skates~ said...

good luck sweets - i'll b thinking about u guys!!!

xoxox,
sharon

blogzilly said...

Good luck.

I am confused on one thing though...on your overnight EEG's, do you have to stay awake? We never received that instruction on either of our overnight EEG's, and I am wondering if I am just misunderstanding your situation or if we should have received different instructions.

Ken

Katie said...

Good Luck to you guys. I will be thinking of you!!!!!!

Dawson said...

Good luck guys. My oh my how we hated those things too. Heres to a smooth couple of days. And know we will be praying for Trevor ( and you too :!!!)

baby trevor's mommy said...

A...OMGosh...I didn't know you were SO close to popping?! I don't blame ya for being ready...no offense taken. I actually prayed Trevy in until the 3rd tho...he was due April 1st. And I just didn't want an April Fools babe.

Sharon...thanks honey. And ditto!

Ken...this one we're allowed to sleep during. Although it really depends on the data the doctors are trying to retrieve. There was a time we thought Trev was having night seizures only. That was a bear...cause they wanted us to press the button all night long. Not fun! Although sleeping in a hosptial sucks in he sleep depot anyway...

Katie & Dawson's fam...thanks SO much!

Oh...and Jonathan thinks I should do a live blog since we'll be connected! ha...we'll see...

...danielle

Adesta said...

D...I'm overdue actually. Was due the 26th...or the 28th..whichever date you want to go with. Of course my original date was April 7th...*sigh* My mom was due for me on April Fools too!!! lol...I still say it's by biggest prank yet. I was 9 days late! All the updates are on my blog with this little terror...*grins* I promised Jen I'd text her when she's born so I sure hope she remembered to take her phone charger with her to Texas! lol

baby trevor's mommy said...

I'm sucha nimrod! Somehow I missed that you'd started blogging?! Although...I'm not sure if it's a prob with my system or blogger...but it won't let me access your site right now?! Weird...I'll try tomorrow! Who knows...maybe we can both live blog. Me from EEG ward...you from maternity?!

..danielle

Monica, James, Connor McGuire said...

Oh goodness, i'm exhausted for you already. Something about the hospital I think just drains the life out of me. Hopefully you'll get the answers you've been waiting on. The laptop was awesome during our last stay...kept me from pacing...as much. 8) Sounds like you've got everything ready to go, & you all will be in my thoughts! Oh if you get super bored, let me know, and we can FB chat!! {{{hugs}}}