Skip to main content

missing them already

I kissed my big boys good-bye at the crack of dawn.


They looked so cute sporting their O's gear. Jonathan's a fanatic.


We've chatted on the phone several times already. Obviously we're the clingy type.


::smile::


Jonathan said when the stewardess came for drink orders Toby requested...


Coke...


the Classic kind, please!


Which got a chuckle from the drink lady.


Last we spoke...they had landed safely in Kansas City, MO. And were waiting for their ride. Jonathan's oldest younger brother. He mentioned this morning that the last time the whole family was together was for B's wedding. And that was in Tanzania. Before seizures. And cancer.


Sadly...Jonathan's dad is in the ER right now. He hasn't been eating. Or drinking. And has pains in his chest. Which the doctors told them could mean more clots.


Of course I'm wondering if it was a mistake letting Toby go.


It's a nasty day here. Chilly. Rainy.


I had my cell to my ear. Jonathan on the other end. Both of us not saying much of anything. I scooched back on the couch. Which looks out our big window. And noticed the rain. It was running down the glass so much like tears that my eyes spontaneously watered.


I told Jonathan...it feels like the whole world is crying.


It's really sad...he said back.


And that's how we feel right now. Really sad.


Which isn't the same as hope-less.


Jonathan's dad has been living a wonderful life. A life of generosity. Integrity. Love. Joy. Compassion. Faith.


It's just really sad that it's being cut so short. So fast...
Labels:

Comments

blogzilly said…
The world cries a lot. Much more than I would ever have imagined it would.

I'm so sorry that you are going though this pain as well your others.
April 11, 2009 at 3:25 PM
Anonymous said…
My prayers are with you all during this very sad time...

Love and blessings
Dawg
April 13, 2009 at 8:10 PM
JSmith5780 said…
Hoping today is a better day!
April 14, 2009 at 7:47 AM
Adesta said…
I'm so sorry to hear that Babu isn't doing so well. The best advice I can offer as someone who has lost their father to cancer, is try and spend each day remembering the good times you all had together and not dwell on the pain and sadness of today and in the coming days. I'm here to listen if you need someone to talk to D. {hugs}

Praying that things improve for Babu very very soon!!
April 14, 2009 at 9:27 AM
Holli said…
I'm thinking of you guys...

((((HUGS to all of ya))))

Holli
April 14, 2009 at 9:48 AM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more