I felt like such a heel not going with Trevy for his first post hemi EEG. Yeeeeeees...Jonathan went with him. Yeeeeeees...he's just as good as me. But still! He's my baby! I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations? Cause Trevy's been back for hours now. And I'm STILL waiting! Anyway... Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds. Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall. And I cried when he told me... that for the first time in almost two years. For the first time since this whole crazy mess began. my baby's EEG is completely normal! Side Note: It's super fun to sob in front of Japanese men and watch them squirm When I kept repeati...
Our family's journey with catastrophic epilepsy, homeschooling, and unconditional love.
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All great photos though, very cute family.
They all have such squeezable little faces!! :-)
You know Ken...I actually agree with you. It's always difficult to label those "different" connections for fear of sounding like there's favortism. I try really hard not to favor any of them over the other. They each have their good days...and ummm not so good... I try to celebrate the unique stuff each of them contribute to our family.
And just like my connection with Toby...my first born...my super athletic boyfriend...is different. And my connection with my girl...my snuggle bug...hang at the mall together Bristel bean...is different.
So my connection with Trevy is undeniably different. And super emotional. Because we don't have words to help us communicate with each other...we rely A LOT on body language and eye contact. Sometimes it feels like I really KNOW what he's thinking. And visa versa. We have a very strong heart bond...
And because everything comes SO hard for him...I celebrate his accomplishments with a passion! Then again...when Toby smacks a good hit I'm the jumping & screaming mommy in the bleachers! And when Bristel says funny things...I belly laugh embarssingly loud...cause I think she's the funniest wittiest girl around! But they don't have to word as hard as Trevy to do new things...and it's different ya know.
Anyway...I think it's funny (as in interesting) that it can be noticed in the way I take his picture. Although some of that is...he happens to be much easier to catch natural too!
Anyway...food for foder for another post someday I'm sure...
...danielle
...d