Skip to main content

big fat thank you!

I can't even fully express the various levels of support we've recieved as time keeps ticking closer to Surgery Day.



Thank you seems so unfullfilling. But it's all I've got right now. Soooo...thank you all so very much for the emails. Visits. Hallmark cards. Phone calls. FaceBook love. Gift cards. Road trip mulah. Care packages...from near and far. And the list goes on!



The genuine care (from family...friends...cyber friends...therapists...AllStar fam...various people whose lives have been touched by Trevy) that has been poured over us is like warm sunlight in our souls.




Jonathan and I both have been blown away by the generosity and compassion that have been showered on our little family!



And then I look at Trevy. All beautiful eyes and sweet soul...and think...of course people love him!



::smile::



On Trevy's behalf (and before things get super crazy) we wanted to just give you all a big fat...



THANK YOU!

Comments

JSmith5780 said…
lol, and you even got some facebook love from me :)

I told you, I get on there OCCASIONALLY!
October 1, 2009 at 9:47 AM
Andi said…
I know you're leaving tomorrow. Just wanted to say good luck and we'll be thinking of you often this weekend and all next week.

Please feel free to text or call me if you need anything, including a shoulder.

Have a safe drive. Good luck in the car for that long. If you are going to the zoo, I think it's supposed to rain on Friday and Saturday here. I hope it holds off long enough for you to enjoy yourselves.

Lots of love and prayers from us!
October 1, 2009 at 3:26 PM
Colby said…
I only wish I could do more....I Will be thinking of y'all, checking the blog/Facebook...AND praying hard for this to go smoothly....

Angels line the highways....

Cyndi
October 1, 2009 at 5:54 PM
Carolyn said…
Oh honey, we're praying for you guys.
October 1, 2009 at 8:23 PM
Adesta said…
I'm on FB daily and never thought to search for ya D. Got Jen on there, but she's a ghost....hahaha

No need for thanks here. You've got enough to worry about without having to make sure you thank me. (or anyone else I'm sure) We luv your whole family and I'm sure if there was any way we all could, we'd all make the trek to Detroit with you so that we could be there for you to lean on when you needed us all. Just know that my thoughts and prayers are with you every step of this journey that you take to get Trevy seizure free. And don't forget, J's dad is looking down on all of you and keeping a close eye on all. Safe travels my friend.
October 2, 2009 at 4:24 AM
Post a Comment

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.
1 comment
Read more

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more