I felt like such a heel not going with Trevy for his first post hemi EEG. Yeeeeeees...Jonathan went with him. Yeeeeeees...he's just as good as me. But still! He's my baby! I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations? Cause Trevy's been back for hours now. And I'm STILL waiting! Anyway... Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds. Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall. And I cried when he told me... that for the first time in almost two years. For the first time since this whole crazy mess began. my baby's EEG is completely normal! Side Note: It's super fun to sob in front of Japanese men and watch them squirm When I kept repeati...
Our family's journey with catastrophic epilepsy, homeschooling, and unconditional love.
Comments
Erin
They sure took a lot of hair.
Love, Mom
Poor Trevy has a little pigtail... he'll never live it down ;)
Seriously- tons of hugs to all of you guys, I cannot imagine going through what you are, you guys are my heroes.
you can totally see the love you have for trevy, and how much you have missed holding him close to you. the pics captured that love and emotion so well...making us all cry.
love you guys, and sending virtual hugs to you all,
jody
these pics totally made up 4 the wait! xoxoxox 2 the whole fam!!!
these pics totally made up 4 the wait! xoxoxox 2 the whole fam!!!
I barely even NOTICED the incision...In fact, I had to scroll back through just to see....
I was too focused on Trevor leaning on you and your precious face....This was the closest I think I have been able to come to REALLY feeling SOME of what you must be going through...All because of the look on your face....
Just beautiful....Thank you....
Wish I could give you all a big, tender hug, myself!!!
Cyndi
xoxo~Sheila
Wishing you both a day full of warm cuddles!
I didn't realize that the incision was so big....poor little guy!!! And now I know why your wondering what to do with his hair!!! Oh those curls...I'm so jealous! I wish I had a quarter of his curls!