Skip to main content

road warriors

I wanted to pop Jonathan in the eye last night when he suggested leaving at the crack of dawn this morning. In fact...he's lucky I didn't. No heaping of the stress!



::wink::



We'll leave when we leave




was my snippy response.




Of course...nervous energy woke me at 3:45 am. Wide eyed and ready to hit the road. Which is why we ended up leaving at the crack of dawn anyway!



10 hours of highway bliss later...we finally arrived at our destination. A former sponsor (from our playing missionary days) has a guest suite right off the highway in route to Detroit. And offered it for us! Very sweet. Annnnnd...we have wireless!!!!



Trevy was a serious road warrior. No fussies to speak of. Just typical sweet Trevy.



I'm exhausted. Jonathan's exhausted but chatting with the kids. Trevy's already cribbed. And snoozing.



We've decided to make a short detour before heading onward tomorrow. We're going to swing through Lima, OH to say I love you to Nana and Poppie and Babu.



And then on to Detroit.



For the prayer warriors among us...please pray alongside us that Trevy stays healthy...and specifically that his ear infection clears up. So they don't send us home with a date six months from now!

Comments

Sinead said…
Trevor, could I have your ear infection please? I promise I will take very good care of it. You can have it back in 2014. Thank you. You are so kind.
Anonymous said…
If you are in Lima you are only about 40 miles from us!!!!! Oh so close. I would have loved to meet up with you!!
I am glad your journey has been uneventful thus far.... Prayers still coming your way....
Marcia
I'm so glad to hear that you made it safely on part one of your journey. You are in my every prayer. Thanks for updating...I will be following along each step : )

Karen
Anonymous said…
Never as clever as others. Just praying. Barbara
Anonymous said…
Praying!!!! You go road warriors!!

xoxo, sheila
Liz said…
Sorry I've been quiet lately, just spending time with the family. But I always read and y'all are ALWAYS in my prayers. I'm glad the wait is over and his date is finally here.

Hugs!
MJStump said…
constantly praying for you guys, and so glad to hear that you got to your first stop safe and sound!

hope the remainder of your road trip goes just as smooth :)

hugs and prayers,
jody
blogzilly said…
I thought I felt a tremor in the Force. You're in Ohio now. And you're going to Lima? Now you will understand why I would love to live back on the East Coast. :)
Lisa said…
Big prayers that the ear infection is gone or a non-issue! We passed through Lima today on our way home (we're in Cincinnati).
Holli said…
Hoping you all made it safe and sound to Detroit.

I can't believe this week is already here. I'll be thinking of you all nonstop. Love you guys...
Anonymous said…
Hello from CT. Just wanted you to know that we at PHBC are praying for you guys. We will check the blog daily to keep you guys on our hearts. Love ya!
Colby said…
Hoping that by tonight (Sunday) all signs of that bad ear are GONE!!!

I will be anxious to get any updates that you have time to give us....

Praying!!!

Cyndi
Mama Skates said…
go away nasty ear infection!
praying alongside u road warriors...thx 4 the update!!!
Anonymous said…
Praying here in Iowa! Continue to travel safe!!!!
Katie
Melanie said…
Big prayers and warm hugs for your arrival in Detroit. All will go well I just know it!

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...