happy being trevy

R hode I sland P arent I nformation N etwork presents the following workshops *********** Date: 03/02/10 Title: Individualized Education Program (IEP): A Blueprint for Student Success (transition) Location: Cranston Presenter: D. Kriner Date: 03/04/10 Title: Transition from Early Intervention Location: Providence Presenter: V. Palmisano Date: 03/11/10 Title: Basic Rights in Special Education Location: Providence Presenter: K. Kuiper ********** Click here for a full listing of all the workshops offered by RIPIN. All workshops are free of charge to attend but registration is required two weeks in advance. To register or to schedule future workshops, contact Suzanne Tobin at 401.270.0101 x123 or Tobin@ripin.org. RIPIN reserves the right to cancel workshops due to low registrations. Ummm...and if you plan to attend any of these events make sure you email me! Cause that just may motivate me to find a sitter!

Said by Toby about his sister during a recent battle of the siblings... And she even scratched my butt when I was trying to retreat ! I love being this kid's mommy! ********** Recently we found ourselves strolling toy aisles on the mission of spending some belated Christmas mulah. We happened upon the baby doll aisle. Not a shocker When you live with a girl ... Most of which were the kind that are motion activated to coo and cry and say "mama mama". Bristel looked around wide eyed before seriously saying... These dolls are creeping me out! ********** I had a meeting to attend the other morning. Which is why I was smoothing on make up and trying to make the best of my really-needs-me-to-find-salon-time hair. Bristel was hanging over my shoulder watching me. Are you trying to look fancy, mommy? Ummmmm...I guess so. I shrugged. Well, if you're trying to look fancy you should wear your wedding dress! Punctuated by... Isn't that a great idea? I love having an...

Trevy has a thing for buttons. More than a thing, really. An obsession. If he's surrounded by buttons and books he's a happy boy. Rewind to yesterday. I was trying to get (the stupid) puppy in the house. So Trevy and I wouldn't be late for his class. She was resisting. Playfully. Running. And teasing. All fluff and cuteness. And neck. Which I was mentally wringing. We were at a now...or you're staying outside and I really dont' care if you turn into an ice cube point. When I finally decided to risk the cold with a treat in hand. And bare feet. Because Trevy is still not safe solo on the steps I protectively pulled the door shut behind me. Cooing and calling. Through clenched teeth. And steaming ears. The puppy licked her lips. Blinked. And continued to insist on playing catch me if you can. Which I couldn't. And told her... fine freeze then ! Turned around. Marched hotly up the stairs. I could hear Trevy calling my name (a newbie skill!) ...

Back in the day. When Jonathan and I (Toby too...Bristel didn't come along until right before we left for The Bush ) were playing missionary. And thought we would be sporting a great tan for the rest of our lives. Before we were hurled into Seizure Land face first...I mean. We used to travel. A lot. It was part of the job description through our agency. We had to do our own fund raising. Fund raising typically involved Public Speaking. Show and tell with the kids. Although frankly...you'd be surprised at how giddy a grown up can get playing Dress Up Like a Native! Gotta love goofy missionary stuff. Oh...and we had a cutsie little video. Which people *hearted*. Remember when Volkswagen had the funky commericals running. Like this one... We parodied and called ourselves Foltzwagen. And because we couldn't resist being super cheesy ended our video with Prayers Wanted. Get it? Instead of Drivers Wanted...we said Prayers Wanted... Oh never mind! ...

I was in a (rare these days) playful mood tonight. Which explains why I was sitting there. On their bedroom floor. Surrounded by Webkinz. Casualties of stuffed animal wars. The kids were losing. And clamoring for my attention. Loudly. You'd think they don't get enough mommy time...what with schooling at home n' such. ::wink:: I was shushing their ruckus. Because I'd noticed something Trevy was doing. His silent determination caught my eye. Even though we've seen some (beautiful) language emerging. Trevor is still a really quiet little guy. He's this muted little ball of energy running here, there and everywhere. Without a peep. But leaving toys strewn in his wake all the same! An art daddy was able to appreciate when I left the boys home yesterday afternoon. I must admit. I was smiling (smugly) on the inside when I opened the door to find an exasperated Jonathan. Surrounded by everything dump-able and Trevy level. Suddenly much more open to the...

He's eligible. ::smile:: I him dressed cute (in mad sale Children's Place finds). And brought him with for the meeting. I feel deeply that it's important to see him. In real life...as Bristel would say. Because he's such a different kid in person than he is on paper. And he didn't disappoint! I couldn't have been more proud! I'm such a sap. My eyes misted more than once watching him motor around the room. Every day I'm more convinced that I'll never get over it. What he's lived through and survive- ing . He is a miracle. And sitting in the (toy storage?) room watching him play and flirt and ooze Trevy-ness...my heart was overwhelmed. He is my miracle. I was SO thankful to have everyone from Trevy's EI team there. In support. And because they love him! Each of these beautiful, amazing women have been Placed in our lives. Of that I am sure. And over the course of these past 2 1/2 years I have grown very connected with them. ...

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Tomorrow is Trevor's eligibility meeting. I have a feeling he just might be. Eligible. ::smile::

When you live with a girl... you may find yourself sporting a tutu... Like Trevy was discovered yesterday afternoon. When you live with a girl... You'll smile frequently. Mostly at her shananigans. Sometimes at her unexpected sweetness. When you live with a girl... ...and you happen to be her brother. Big or little. She'll insist that she will marry you when she grows up. But only because daddy is already taken. When you live with a girl... You may find yourself being cuddled... often. And possibly against your will. Because if you live with a girl... You already know girls like to be in charge. When you live with a girl... You should definately be prepared to spend money... on fancy dresses. Which must be worn on Christmas dinner dates with daddies. Our life wouldn't be complete without our girl. Who is growing up. Too quickly. Happy birthday my darling five year old! (posted a week late because...well...if you live with computers then you know they like to crash at i...

Let me clarify. I am not an advocate of radical brain surgery as a first option in controlling epilepsy. That would be nuts. Let me be clear. I did not ever in a million years want to see my two year old son like this... or this... If you thought so...you would be nuts! But what I am advocating...is that parents of children with refractory seizures. Meaning seizures that do not respond to medication. Seizures that slowly steal children. Their joy. And energy. And ability to simply live. Uncontrollable saturating seizures that demoralize families. Infantile Spasm seizures for instance. Those parents should have access to every weapon available to help rescue their children. Sadly those children...my child...are written off by the majority of the neurology community. That is why so many IS families make the long emotional trek to Detroit. To see Dr. Rockstar . Who was brave enough to explore the possibility that some of these kids could be rescued. And so parents were ar...

But do me a favor and close your eyes. So the (I was going to say tacky...but then I thought that some really sweet kid probably put it together so I'll say zealous instead) video doesn't skew the focus. ::smile::