Skip to main content

dream night 2010

I'm not gonna lie.


In between all the therapies, toxin pushing, seizures, surgeries, doctors appointments, special ed advocating, doctor discussions, meltdowns, tears, fears, sleepless nights, fuzzy futures...


in between all that...


you will find a Special Needs perk hidden here n' there.


Dream Night at Zoo is one of those perks!




Our local Children's Hospital sponsors a special night every June...



for families dealing with chronic medical conditions...






to come and enjoy all the zoo has to offer. Beside other families living in the trenches too.






There are fun little exploration centers set up everywhere...




like this clay-mation station which sensory Trevy wasn't too thrilled about...





But his artsy sister was!




Toby actually stayed behind this year. Instead, attending a very (if you're a 9 year old boy) important Little League game. It was a big deal. See, I'm fairly uptight about supporting each other. But he came to me very maturely and explained his reasons - like what if he's supposed to hit in the winning run but he's at the zoo instead? I was really proud of the way he handled the situation. And compromised, letting him go to the game if he promised to spend extra 1:1 time with Trevy to make up for missing Dream Night.



While his team was busy winning...




Trevy and Bristel were busy adding their hand prints to a special exhibit...





that will grace the halls of Hasbro Children's Hospital.




I couldn't get Trevy to unclench his fist!



Until it was time to splash in the wash off water bucket anyway!









We had a really nice time...






Dream Night is definitely on our fave things to do list!





We're already looking forward to making next year's Dreamy memories!

Comments

Wendi Taylor said…
It must be so hard to balance the needs & desires of your "non medical" kiddos against Trevy's needs. I'm glad it worked out for you this time :)
Anonymous said…
This is a Bibi question. Did Bristel lose a tooth already? One picture looks like she did. She is growing up too fast!! Love and hugs all around, Bibi
Danielle said…
Special Needs or not...mommyhood is the business. Trying to balance everything. And Shepherd little hearts. It's tough stuff! I'm hoping that lots of love covers a multitude of mistakes! :)

Bibi...she lost two teeth with the fall last year. AND two teeth naturally this year! She's getting SO big!

...danielle
Anonymous said…
This was a dreamy post! Two princesses at the top. Two Princes following! He had his hands open on the glass. I like how he does not have the binky in his mouth!

Barbara
(who has decided that 1 and half year difference does not a cougar make)
JSmith5780 said…
This is just so great for all the kids!
brendalynn said…
so that chick with the black && pink hair.

i LOVE her hair!!!

totally awesome!!

&& it looks totally fun :]

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...

it ain't sexy livin' on an island...

Especially when you have to cross bridges to get ANYWHERE. Very LARGE bridges. The crests of which I inevitably get stuck at. Speaking of...why is it that at the tippity tops of our bridges...the railings always open up? To reveal an eagle's eye view of the white capped depths below? I HATE that. And sure enough...in route to Dr. Pedi yesterday...they must have seen me coming cause traffic ground to a halt at the top of the Mt. Hope Bridge. Where I felt less than Hope-ish. My palms gushing my nerves onto the steering wheel for a good 15 (felt like forever) minutes. Not just things medical bring out my cowardly lion. Heights do too! Anyway... Grabbed an iced coffee and chocolate cream filled to settle my nerves on the way. And we arrived on time...in one piece. Of course. Dr. Sick-Visit-Pedi breezed in chart in hand. Glanced down. Then at Trevy. Then said... "He has a history of Infantile Spasms?" Surprise and speculation in her voice. We get that a lot. It...