Skip to main content

like a stray human (a picture marathon)

If yesterday was a breeze...


and it truly was.  Our first tear free hook-up.  Lots of snuggles and cuddles and iPad fun together.  Enough pictures for an ample Picture Marathon.  Once my extra Pisca space purchase is completed.   



And if yesterday was a breeze. 


Today was the complete OPPOSITE! 


There was screaming...and throwing.  I had no idea hashbrowns could make such a mess. 


There was jumping and hitting.  Listen...mommy has issues with heights.  Hence banging on our sixth story double paned window is expressly prohibited. 


There was biting and spitting.  I swear if you blow another raspberry at me I'm spanking your tongue, kid!  



And pulling of the rainbow pony tail.  Which is connected to all those little electrical conductors on his head.  And happen to be very easy to disconnect when their rainbow pony tail is fiercely tugged on.  Disconnection means a longer stay.  So keep your grubby mitts off the rainbow, Trevy!  



And the fun persisted during the 30 minute car ride home. 


Although it was less anger management needed aggression.  And more slappy silly.  Yet still involving lots of screaming.  To which Toby (who spent today with us) finally said,

Trev, you're acting like a stray human!  




::sigh:: 


This go was definitely easier on the front end.  But perhaps rougher on the back.  


But he sure does look cute.  


::smile::

Comments

Holli said…
You got some great ones this time...LOVE the raspberry ones. Austin's been doing that A LOT lately. It's how I know he's awake lol!

I know you're so relieved that is behind you now. Hope you're getting some recovery time in.

By the way, been meaning to say thanks. For all your support and advice. It helps. A lot.

((HUGS))
Sinead said…
Glad you all survived
Anonymous said…
hehe - stray human! Toby is so bright! Barbara

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...