happy being trevy

The Children's Neurodevelopment Center at Hasbro Children's Hospital presents Epilepsy Parent Conference Saturday. May 15th. 8am - noon George Auditorium Rhode Island Hospital 593 Eddy St. Providence, RI (reservation free of charge but required - 401.444.4800) Conference Schedule 8 - 8:45am check in outside George Auditorium 8:45 - 9am opening remarks 9 - 9:30am Epilepsy 101 - presented by Dr. John Gaitanis, MD, Director, Pediatric Epilepsy, Hasbro Children's Hospital 9:35 - 12 pm The following workshops will be offered at hourly intervals School Issues - transitioning from EI; understanding IEPs and 504 plans; working with your child's school nurse/nursing plan Parent and Family Support - managing anxiety, depression and social isolation Transition to Adulthood - assisting your child with the transition to independance Twenty-one and Still Dependant - planning for the post school age years, including legal issues, guardianship, SSI, financial planning, trusts and insur...

The wicked cute little craft below came home in Trevy's "pa-pa" (Trevy speak for backpack) yesterday... The following note was written on back... Great job saying "purple" and "red"... Trevor said "all done" a few times during the activity, but was easily redirected back. Great job, Trevor! Have to admit...Grams and I got quite the chuckle over Trevy "saying" all done! That's his newest trick you know. I wasn't too sure he really got the meaning. But now I'm thinking... hmmmmm....

Today Trevor made another flower in school!! He used lots of words like purple, red, and pat pat pat!!! During PT Trevor pretended to be a wheelbarrow!! Great job! During morning table time Mr PT came in and did yoga with the students. We were able to get Trevy to participate!!! Trevor did the candle, squrriel, mouse, and lion!!! His favorite was the mouse!! ********** Is it just me...or do you think she's just trying to achieve blog star status?! ::wink::

Fair warning. This post is long and rambling. And very very sappy. (hint hint to the guys) Have you ever felt it building up? You're doing something innocent like scouring the house. Cause that's what you do to relax. And there you are. Sweatin' to the moppies. Innocent enough. Until you suddenly realize that your silly heart has been stirring. And stewing. And squeezing. Your insides. Right up your throat. Until it's hard to breath. And your eyeballs feel like they're about to burst. And you're really not even sure what just happened. But obviously something heavy has been hunkered down. Waiting until you were so preoccupied that you wouldn't notice. And suddenly there it is. Whatever it may be. And it's bulging. And pulsing. And needing to explode. There are two places that my soul thoughts will sneak up on me. The shower. And when I'm zoned in on cleaning. That's exactly what is happening to me today. Suddenly I jus...

Portsmouth Free Public Library presents Touch A Truck Saturday, May 1st 10am - 2pm At Glen Park Admission $3 per person (all proceeds benefit Portsmouth Library)

Trevor handed this to me and said "Minnie". I think he is ready for Disney It was a 2 for 1 day! Miss. CNA also sent the pic below of Trevy making me a beeeeautiful flower!

True confessions. I have never liked my blog's name. I chose it quickly. And under emotional duress. For two years I've wished I'd had more energy to be clever. Not to mention the official title I wanted was Dear Trevor. I was going to write each post as a journal entry to Trevy. For him to read some day. But a couple chicks had already snagged the deartrevor.blogspot domain. They'd written a single post to some dude with a great name. Who...from what I could tell...had no clue they existed in the first place! Very irksome. But really...I wasn't in love with that blog title either. And you know the old saying... All things work together for good... So all this to say. I'm seriously mulling retitling Trevy's blog. I am doing a bit of research about the best...most seamless...way to accomplish this. Consider yourself head-upped.

Photo and video editing at www.OneTrueMedia.com

Trevy has developed a recent passion for all things vehicular. Cars. Trucks. Trains. You name it. Before surgery he enjoyed cars too. He liked to make the wheels spin. It's different now. He drives them for a handful of seconds. Like a little boy should. And according to him they all say "bee bee". He has a knack for the partial words. Approximations as the Speech Therapists of the world like to say. ::smile:: He's 100% boy. For sure. So this morning I was trying to keep the crankies at bay with outside play. Trevy has always had a passion for the outdoors too. So there we were. Soaking in the sun. And running circles around the house. Sneakers and bare feet getting slick from the still dewy grass. Which I really hope the turf builder starts working it's magic. Not a fan of the patchy lawn. When down the road comes barreling a humongous Home Depot 18 wheeler hauling a neighbor's delivery. We live on a fairly quiet street. Not much ...

And yes ... that's my excuse! ::smile::

Each State offers a variety of services for the disabled. He's so photogenic that it's easy to miss. Trevor is disabled. One such service offered by our state is Respite. The State provides 60 hours of respite to be used over a six month span. The idea is to help support families who are so entrenched in the loving and caring that they hardly have time for a shower. Never mind a date night. Or to take their less needy kids to the movies. It's a lovely idea. And I've known he was eligible for a while now. And have been encouraged to apply a multitude of times. I'm not really sure how to define the emotional hump I had to get over? I suppose it's because Trevy is my child. My responsibility. It just feels mooch-y or complain-y to ask for help. Or admit that help is needed. So I didn't. Until recently. A close friend of mine (wink wink J!) is a qualified Respite provider and pretty much twisted my arm til' I cried "UNCLE"! And...

I found out who his ot is and he had pt today. Trevor is enjoying story time while eating his snack Sent from Miss. CNA's i-phone I just heart her!

I had to run errands yesterday. With the kiddos. And Grams. Buying in bulk just makes sense when you're feeding a family of five. So we were at BJs. With a cart full of cheese and green beans and the like. Toby and Grams were in a different lane checking out. While I had Bristel and Trevy perched in the double seated cart. I love the double seated carts! Keeps two of the kiddos contained while still allowing maximum cart fillage. Which means less trips to the store. Have I mentioned that I'm not a big fan of food shopping? The check out clerk was obviously lonely. And MUCH too talkative. Me? My life is pretty full these days...so making BFFs in the check out lane isn't really on my to-do list. I was totally kicking myself for not opting to use the self check out lane. ::smile:: Besides. There's the Trevor factor. If our contact remains in the 10 minutes or less visual observation only zone...the less likely questions are asked. Or curious body langua...

A ton of people asked me about the super kewl keyboard Trevy scored for his b-day. It's called Cool School by Fisher Price. Click the picture above to learn more. It plugs into your computer with a USB. Jonathan just recently hard-wired our computer to our tv...so it's really nice because the idea is Trevy can play his keyboard and watch what he's doing on the tv screen. I'm hoping it will provide a two-fold learning op. 1) He'll associate his keyboard with the tv and stop banging on mine 2) The bigger screen will help him see what he's doing by providing a bigger field. The games are all over his head right now...and he much prefers banging on the keyboard. But we're gonna keep working at it. And Bristel already volunteered to be his peer-model at home! ::smile::

He's such a boy!

Sooooooo... You know how I've been talking about the incessant nose picking? Til' it bleeds picking? Yeah...about that... This is how I found him after his nap yesterday. If you think he looks bad...you should see the crib. ::smile::

Happy 3rd Birthday My Beautiful Crooked Binky (and other quirky things) Boy!