happy being trevy

  When it’s jam packed with practical and seasoned advice, that’s when!    And is the express reason why I’m both publishing this comment on the post for which it was intended (a post & comment dialogue worth reading here ) and creating it into a post of its own.  So that the wealth of information is not lost in comment-ville.  To never again see the light of day.    “This discussion is very informative and lively. My late comment will be about what I know...position changes. I am a big advocate of diaper changing in standing. I wrote about it here (near the end of the post): http://www.therextras.com/therextras/2008/09/tips-from-my-several-hats.html What I forget to mention in that post is - try to have the child face a wall, hands on the wall, parent working behind the child. A mirror or other distraction can be on the wall at the child's eye level. I do think there may be a vestibular (sensory) discomfort from laying down but that woul...

  I served nachos and salsa for lunch.  Bristel, feeling adventurous, tasted the salsa and declared…   Yummy!   but…   it almost spiced me!    **********   Trevy running outta Miss. May May’s car.  Arms extended.  Holding a construction paper card.  And hollering…   Day!  Day!    Trevy Speak:  Happy Mother’s Day!   *********   Bristel:  When I’m a teenager and you teach me how to drive perfectly and I know how to drive perfectly do you know what I’m going to drive to?   :: pause for breath ::   I’m going to drive to CVS and buy a pack of gum!   **********   Trevy’s (melt your mommy why don’t you!) Mother’s Day Craft   *********   Toby while shoveling leftover seasoned burger into his mouth:   Wow.  This makes me feel like I’m half way to Heaven!    **********   Bristel after being declined a sip of m...

    I got the what-for this morning for forgetting that today is…       Oops…   Guess I’ll need to buy two to make up for it!     danielle

    If you live in a rural-ish area, like we do, chances are the sports options for your Special kiddo are slim to none.    Gymboree is too far away.  So is the Y.  And the gymnastics program in town that he could maybe (emphasis on maybe ) join is way outta my budget league.  Sure…there are town rec things I could plug Trevy into.  I’m all about integration.  But let’s face it.  He needs an aide with him at all times . (safety, attention span, new skill learning, yada yada)  And while I can (and do) fill that role…I would rather be cheering mommy on the sidelines.  I’ve got the pom-poms and everything.  If Bristel’ll let me borrow them.  Also, many sports are over his head right now.  I don’t want him to be Lost Puppy or frustrated because he doesn’t understand what’s being asked of him.  Which is why I signed him up for The Challenger baseball team this season.  It’s wonderful.  He rocks th...

    You convince yourself that the Target 15 minutes further away is just organized & stocked so much better that it’s totally worth the extra gas…   when really it’s just cause you want to check out the spiffy outpatient therapy center in that direction and it really has little to do with Target at all.   :: wink ::   danielle

      We’re looking for the perfect picnic table to grace our new patio.   But in the meantime…     A couple loungers.  Hand carved from African wood.  Reminders that once upon a time we lived there…   danielle

  Trevy had his 4 year old well visit today.   (somehow I’m just as exhausted as when it’s not a regular, run-a-the-mill kinda visit)   He’s fallen victim to the severe allergies this season.  But it’s weird.  Cause it’s only affecting one eye.  His right eye.  The side that theoretically was (past tense since it’s no longer in his noggin’) controlled by his left brain.  Which he rubs rubs rubs until it’s swollen and bloodshot.  Dr. Pedi recommended trying an OTC eye drop to see if it helps.      He’s 66th percentile for weight at 38lbs.  Which is weird. too  Cause he looks so skinny.  Seriously.      And 44th percentile for height at a whopping 40 inches.  Give or take a pathetic (because ,yes…we’re losing them.  Sniffle.  Sniffle.) curl.  Again, weird.  And a little bit sad.  His newborn length was 95th percentile.  We had ourselves a strapp...

  Such a fun idea that I rounded up the fam for a good old fashioned brain storm.  I’m color coding our contributions.  Daddy . Mommy . Toby . Binti . Trevy .    Gulls Game – a super cheap and super fun summer family night Golf Butterfly Zoo Dream Night @ the Zoo – this is a special treat for families who battle life threatening or serious, chronic conditions on a daily basis Story Land & Santa’s Village – I can pimp for both because Make-A-Wish is an amazing organization and not only blessed Trevy with a trip to Disney World last year…but also provided tickets to both fun destinations for us this year!  Beach – it’s a crime to live so close and never go Frosty Freeze – yum! Try a new restaurant – because Mickey D’s is just getting old Paint the living room – something green Build a family/school room in the dungeon basement Basketball Camp Play dates – don’t get your hopes up, buddy! Make the AllStar team Watch summer WipeOut togethe...

    Materials :   Peeps Chocolate Chips Pretzel Stix Foam Bowls Microwave & Microwave Safe Dishes Stirring Utensils Super Delicious Cute-y Kid(s) Mommy and/or Mommy’s Helper (this craft works best when mommy is well relaxed and caffeinated! )       Targets :   Fine Motor Development (breaking pretzels, stirring, etc) Math (counting pretzels, peeps and chocolate chips) Science (birds are Science-y, right?) Colors (yellow peeps) Receptive & Expressive Speech Following Directives Attention Span (Trevy worked on this for about 10 minutes. IN A ROW!)      Start by having your Munchkin break the pretzel stix over foam bowl.  I’m sure you’ve guessed by now that the bowl is Peep’s nest.  :: smile :: You can work on Math by counting the pretzels and comparing sizes. Receptive Language by giving simple one (or two, if you’re brave) step directions.  Example:   Break the pretzels, Trev...

    A good laugh and a good cry both cleanse the mind.   -- my fortune cookie

  My stupid doctor speak moment of the week:   After sitting through over an hour and a half of torture in the Hematology/Oncology waiting room.  I had ALL three kids with me by the way.  This is an important point.   I finally couldn’t take it anymore and asked if anyone knew just when we'd be seen.  I was trying to be patient.  Because.  Well.  Let’s face it.  Sitting in a room with children clearly battling cancer has a way of adding perspective and clarifying that we are not the axis of the universe.  But .  I seriously wasn't sure I could contain the kids any more.  Trevy'd missed his nap.  Missing naps seems to enhance the hyper in him.  And I wasn't aware I'd need to pack lunches.  All three of them were begging for food I didn’t bring.     Fun times.   Dr. Hematology sees me immediately upon my complaint.  (which begs the question: where the HECK was he for the past h...

  I hate to use the word lucky .  But fortunate seems just wrong too. And since evidently I’ve not downed enough of my morning mo-jo (Dunkin’ Dark Roast…thank you) I can’t think of anything better than saying…   I have the honor of living just a hop, skip and bridge away from another IS family.  I love them.  Even if we don’t get to see each other as often as I’d like.  We’ll have to try over the summer!    Jacob is my other little boyfriend.  So cute.  So beautiful.    I love Jacob’s mommy too.  (Hi, B!)  Especially the way she shares her thoughts.  Her heart.    And a recent post was SO powerful.  To me.  That I had no choice but to share it with you…   “ If 4.5 million children were born in a year, maybe 1,500 of these children would develop Infantile Spasms (IS) in their first year of life. And maybe 1,200 of these children would have symptomatic IS in which an underlying...

That's right. I'm shamelessly pimping my baseball cutie. ::smile:: You can grab the code in the box below and add his delicious cute-y-ness right to your blog!  (I hope.  I'm still new at this whole code thing.  But it looks like it should work.) <a href="http://happybeingtrevy.com" target="_blank"><img alt="Happy Being Trevy" src="<a href="http://s302.photobucket.com/albums/nn103/tanzie213/?action=view&current=baseballtrevyblogbling.jpg" target="_blank"><img src="http://i302.photobucket.com/albums/nn103/tanzie213/baseballtrevyblogbling.jpg" border="0" alt="Photobucket"></a>"/></a>

      Between his delicious cute-y-ness and the beautiful sweetness of the coaches & other families…   It was almost more than my sappy heart could bear.     Trevy’s 1st baseball game day.  On Mother’s Day.      He was VERY overwhelmed.  So was mommy actually!      I was thanking my lucky stars we snagged a "Bossy Buddy”.     :: wink ::   Buddies are older, baseball savvy kiddos who come and help the Special kiddos get the hang of the game.     And the Lord knows, Trevy needs bossy girls in his life!  The kind who don’t mind putting his glove on a dozen times in a row.  Cause he keeps throwing it.  Sometimes…I’d swear…with a cheeky little gleam in his eye too!         And he certainly had a cheeky smile when he put sand on her shoulder!   That was after he got bored building sandcastles down the 2nd ...