happy being trevy

    Are your kiddos growing like weeds too?     Do you live in my neck of the woods?     Then you might be in love with this     photo credit: childrensorchard.com     See you there!   …danielle

Our iPad is by far the best therapeutic (and everything in between) gift we ever purchased for Trevy!  And I love to share great apps as I stumbled on them.  I even have a tab way up at the top of my page where I've listed them.  But it needed some sprucing up.  I'm still working on it but in the meantime.  Here ya go!  Enjoy! Mommy's Tools Time Timer Seizure Tracker Moms with Apps Free App Tracker Digital Storytime - email subscription Trevy's Top Ten Youtube Netflix Pandora PBS kids Anything Sesame Street Talking Friends - all of them! Jumpstart Preschool Sonoflex (but we got it during the .99cent sale) My Underwear ABCs  Magnetic ABC AlphaBELCH My First Puzzles Alphabet Jumpstart ABC Book Elmo Loves ABCs RedFish Alphabet Andrew  123s RedFish Balloon iTouchiLearn Numbers Dots 4 Tots Infant Arcade Numbers Big Red Barn ABA Anything Kindergarten.com Adam's Game Model Me...

  It’s always a task to present shop for Trevy.  In fact, I pretty much dread it.  I want to balance therapeutic benefits with fun with not wasting money.  We have a knack for buying things that just don’t interest him.  And I have a knack for getting sappy when I spend too long looking at the age brackets.  It doesn’t help that right now he’s in a therapy funk.  Anything that even hints of educational or therapeutical annoys him.  You should see the battle of the Trevy Trays we’ve been having lately!  And really…can I blame him?  The kid has been in a variety of therapies since he was SEVEN months old!  He can smell a therapist from a mile away.        But alas Christmas is coming.  And he’s starting to notice things.  In fact, his newest fave phrase is “I buy that!” while flipping through toy catalogs or the toys r us app which silly mommy downloaded or the ever marketing of young minds tv commerc...

    Yeah.  Me too.     My heart has been so weary and heavy lately.     I’ve seen all these Thankful Lists floating around everywhere.  FaceBook.  Blogs.  Forums.      And to be quite honest…I don’t read them.  In fact, I deliberately click away from them.     I’ve even randomly contemplated writing a Crab List alternative.     Because I’m tired and feeling sad.  I’ve been calling it the Post MMR Blues.  I held my breath and had Trevy vaccinated (not without biting the nurse’s head off when she asked if I wanted to just get him all caught up though).  Now I get to freak out on the inside for the next two weeks.     Of course, I’ve been feeling sappy for weeks now so blaming in on yesterday’s vaccination drama doesn’t really work.  And I know it’s a good thing to count your blessings.  I also know that I am blessed.  Very.  But knowing...

    Dysarthria     Just one of the mile long list of labels that make up the Trevy Medical Portfolio.   In mommy lingo, it means that Trevy’s tongue muscles are weak.  And because they’re weak, we need to engage him in activities that force him to use them.  Using them makes them stronger.  And the stronger his little tongue becomes…the more his articulation will improve.  And I needs me some better articulation because sometimes I just can’t crack the Trevy code.  Also…he’ll be a better kisser!     So I came up with this…   I used an old wooden puzzle tray that wasn’t being used.  I knew I wanted him to blow through a straw.  I knew because Miss. Speech Therapy told me so.  But just blowing can be boring.   So to spice it up…   I hid pictures under died rice (which btw is a super easy DIY project ).   Throw in a funky straw… and huff, puff and blow the picture out! But...

  JumpStart my ABC book – FREE today!   Mr. Turkey, where are you? by Visual Works – FREE today!   Articulation Station by Little Bee Speech – FREE today!   Christmas Activity Book HD by BabyFirst – FREE today!       For more great free (and discounted app alerts) be sure to check out Digital Storytime !      …danielle

      Cutest thing E.V.E.R.           Miss. May May (Trevy’s school aide) printed and laminated these up for me.  The plan was to add them to our December Trevy Trays .  But they were too cute to wait!     Trevy and Bristel are looooooving playing with these cards.  And it’s just too much (cuteness n’) fun watching them act out all the motions.      My personal fave is Sneak Like an Elf.     Trevy actually pulls off the elf look rather well.  The sneaking part?      Yeah…not so much!  Not a sneaky or quiet bone in his body!       In fact, I think Trevy could give Will Farrell a run for him money!     Print (so you can play too) your own here .      …danielle

    not image of the actual traveling bear…but I think it’s too cute     A cyber (and special needs) mommy friend emailed me recently.     Asking if she could use Trevy’s Story as the inspiration for a beautiful (and stinkin’ adorable) awareness project she’s working on.     I said…     Ummmmm…lemme think about that…     YES!      I was surprised and honored and happy and all sorts of emotional responses.  Which did not exclude sappy.        Trevy has an extraordinarily rare and catastrophic seizure disorder.  Playing a part in spreading awareness has become a passion for me.  And in a way…is intricately woven into the fibers of my healing process.  We all heal in our own ways.     Evan Bearowitz (Trevy’s aka) is now accepting come-play-with-me requests!  In fact, I’m pretty sure his first destination is going to be England....

  Non-stop.     I would say it was at inappropriate and random times but really…it’s every other word out of his mouth!  For instance…     **********     Me – Trevy, what would you like to eat?   Trevy – pooooop   **********     Me – Trevy, let’s say our prayers.  What are you thankful to Jesus for?   Trevy – poop     **********     Me – Trevy, what song would you like mommy to sing for bedtime tonight?   Trevy – poop song!     *********     Random Guy At Church – Hi, buddy.     Trevy – Hi, poop!     **********     He went out with a friend recently and she reported as they passed a table of strangers he happily informed them…     I poop potty…     Which is a bald faced lie.  Clearly we need to work on that.  The lying and the poopin’ in the potty.   ...

      Click here quick to get your free JumpStart app!  Trevy and Bristel are already in love with it!  Lots of great preschool goodies.  And the hot air balloons get two mommy thumbs up!    …danielle

  I’ve been putting this post off because I want it to be perfect.  I want to capture all my thoughts and feelings in a glass jar for you to experience with me.    But I just don’t think it’s possible.    I’m not a skilled enough writer.  But more so because some things are just too precious to be fully expressed.  So instead, I’ll just share little snippets of special moments and keep the rest marinating in my sappy soul.   The Variety Club hosts a special day for special families twice a year at a very special place which Trevy likes to call “Elmo’s World” but you might know as Sesame Place. We’ve been invited to attend in the past but for one reason or another it just never worked out.  Until this year. And the best part is…   some really amazing and beautiful friends were coming to join us!   Sophie and her mommy Emma and her mommy and Ryan and his mommy   Four IS kiddos and their families toge...