happy being trevy

I don't know why my eyes were misting.   There was really nothing special about it.  Trevy and I were just having a regular recliner based snuggle fest.  He in my lap.  The book of his choice in his.  The rejects (which he'd been scolded for enthusiastically chucking) littered around the living room floor.  Not uncommon.  Jonathan and the kids huddled around Trevy's iPad over there on the couch.  Grams bought Toby the Madden app yesterday.  Which evidently is a hit.      Trevy must have been iPad-ed out because he was content to cuddle me up with a book.  He was pointing.  And approximating.  And complaining when I failed to guess his approximation attempts.  Which was making me smile because he clearly knew what he was saying.  Even if I didn't.  And that is just such a miracle.  Also, he's adorably hysterical when complaining.  My mind must have wondered because he was ...

Completely random.  Seemingly pointless. Yet so utterly true.   I hate my couch.  I hate hate hate it!  I hate the way the cushions slide off every time any one sits on it.  Cross my heart I must reposition everything a hundred times a day.  I hate the slow slide that happens while watching tv.  There I am...innocently catching the latest Apprentice.  Not even moving.  Afraid to breath too deeply for fear of the cushion scooch.  And yet scooch they do anyway.  And suddenly my derriere is resting in the gap between the scooched out bottom cushions and the pillow cushions behind!  I hate that!  And will jump up and reposition everything with a vengeance.  I hate the ten years worth of dust that poofs into the air with even the featheriest touch.  Which accomplishes two things.  1) Perpetual sneezing.  2) The need to dust several times a day.  I hate the too big slip cover.  Purchas...

She's one of the most ferocious and wonderful advocates I've ever had the privilege of working beside in my 25 years... Dr. Developmental Pedi was throwing over her shoulder at the intern tailing her.  I gathered she was referencing me.  As I was the one waiting in the room.  I winked and asked... Does that equate to being a colossal pain in the butt? She smiled and replied... Well...you did find my email.  Which is true.  But hey, if you put out there.  For all of the big wide connected world to find?  Someone's bound to give it a go.  Right?  ::smile::  I've emailed lots a medical professionals in the past three years. It's been six months since we last had the joy of being crammed into her entirely too small office.  Where we are further joyed to sit on the entirely too uncomfortable chairs.  What's with doctors offices and chairs that feel like they're trying to repel you?  Maybe it's a New England...

I wonder if you've noticed my blog absence lately.  Both in posting.  And in reading.  Or at least commenting.  I still read all my little IS buddies blogs.   Because my heart has this really sappy connection and can't rest if I don't check in.  And it's not that I haven't been posting.  It's just the emotion has been lacking.  On my side anyway.   But my time is SO crunched.  My energy SO drained.  I just haven't been as into it as I once was.   The thought even crossed my mind recently that I'm not sure why I continue to add my voice to the noise?  Or that I will.  That maybe it's something I could cut out to open more time and energy for other things.  Like working out for instance?  Lord knows my jeans are begging me to!   But then last night I got an email from a local-ish mom.  Reaching out to me because she deeply believes her baby has been misdiagnosed.  Especially af...

Oh sheesh. Trevy has always been Mr. Compliant.  Happy Goes Lucky.  Happy Being Trevy. But lately we've noticed a blossoming pattern.   He's becoming Trevy The Opinionated!  I dare you to try taking his iPad away!  According to Mrs. Speech this is a wonderful developmental milestone to behold.  To mommy & daddy however...it's becoming a parental challenge!  Just when I thought I had being Trevy's mommy down pat too!  So when Miss. CNA  May May showed up early this morning.  To drive Trevy to school rather than taking the bus like normal.  Because today marks the first day of Trevy's pre-preschool ABA therapy.  And his routine was turned on it's head.  By yours truly.  He was having NONE OF IT!   None of it, I say!   It was absolutely heart wrenching watching them drive off.  Trevy sobbing and reaching for me.  Totally not grasping our desperate attempts at explai...

I have never been good at seeing shades of gray.  I suppose I was just Wired to see things as black or white.  Right or wrong.   So when Blue Cross Blue Shield of Rhode Island informed me (via my new case manager) to take my outpatient Speech Therapy cause up with the State Legislation.  As the Law is clear these therapies are to be provided by the schools for peoples between the ages of 3 - 26.  There may have been steam thundering from my ears.  I really couldn't say.  I was too busy fuming.  The fire was further stoked when I was asked if Trevy has Medicaid.  Because, after all , isn't that what Medicaid is there for?  Why now that that you ask.... NOOOOOO   I suppose I'm old fashioned or closed minded or whatever...but I'm rather convinced that's what my Health Insurance is there for!   Because frankly...  ...if Trevor doesn't fit the bill of who qualifies to have insurance covered Spee...

Love note from Jonathan who went golfing before work (with permission :) and sweetly prepped both coffee and Trevy's meds.  Am greeted by bed-head Trevy with "paaaaaaaaaaaad" demands.  Which is of course Trevy speak for iPad.  We may have an addiction problem on our hands!   ::smile::  Bristel is complaining that she's not a "buser" today.  Evidently it's just not cool for Kindergarteners to be picked up by mommy!  Meanwhile industrious Toby has already completed his Penmanship and Science and  is now begging to add a Pokemon video to our Netflix que!   I think it's time for a 3rd cuppa already!  And the clock just struck eight am! 

And opt for the SmartWatch instead... Overview Seizures affect more than 50 million people worldwide including 3 million people in the US. The SmartWatch SmartWatch enables early intervention by caregivers upon receiving alerts of sustained abnormal movements. At present the monitoring is done 100% by caregivers who need to be in close proximity to the patient 24/7/365. Following is a summary of the product’s features and capabilities: The SmartWatch alerts caregivers to the occurrence of sustained abnormal movements that may be caused by an uncontrolled, convulsive seizure which lasts for more than a few seconds. It can be set to alert the caregiver at a specified time interval after detecting abnormal movements. The SmartWatch records abnormal movement patterns and duration for later analysis by a medical professional. The device is fully portable and can be worn in and out of bed, during sleeping and waking hours as the patien...

No doubt I think Bristel is one of the most adorable and hilarious kids I've ever met. Her antics often leave me glowing with pride and joy and hilarity.   Like yesterday's for instance.   Evidently she rode the bus beside on of her classmates who happens to be the big brother to one of Trevy's classmates.  According to Bristel they spent the five minute bouncing ride chatting about ways to help their little brothers learn!   You're glowing too aren't you?!  ********** Trevy loves his Miss. Speech.  Miss. May May tells me he cries every time Miss. Speech leaves the room without him!   There are no words to describe the warmth in my heart knowing the quality of the people working with and loving my little man!  I truly feel blessed!    ********** Toby and I have gotten off to a bumpy start working with his new online curriculum.  It's really really nifty.  But new.  Which means a learni...

Showing off his Elmo backpack - he didn't know mommy had a Elmo Lunchbox hiding inside! Bristel getting the 1st day of school low down from Trevy Trevy's reaction to seeing Miss. May May (um...that's Megan) irresistible cuteness! She picked a Tink Backpack! Looking a little nervous Trevy tends to shove his fist in his mouth when he's feeling nervous - cute now - later??? I spy the big yellow bus with MY little eye!

Remember a few weeks back I posted a poll about how much you thought it might cost these days to have one's brain tissue sliced and diced and pathologalized.  Yes , I just made that word up.  I'm crazy like that.  ::smile::   I myself totally forgot.  And would have left you hanging forever had not yet another bill arrived in the mail this week.   Let me pause here for a sec.  And emphasize that I thank God our old insurance was our insurance at the time of surgical intervention.  As I somehow doubt our new non-Speech Therapy covering insurance would have gone to the same lengths to rescue a sweet little seizure saturated boy.  No matter how adorable he may be.  But I digress.  And run the risk of leaving you hanging again.   ::drum roll please::  73.5% of you (sorry, guys but you were wrong) voted $15,345.75  18.4% voted (wrong too) $5250.00 6.1% of you (gave me way too much creati...

 Bristel comes strutting around the corner in all her birthday suit glory and dramatically declares... I was feeling uncomfortable in all those clothes!  I promptly sent her boot back upstairs to make herself uncomfortable again.  And after she was out of sight...laughed hysterically!  ::smile:: ********** Trevor has this to say as I passed by his room the other morning... ROOOOOOOOOOAR!  *********** Toby from the backseat... You know mom, I find the news very interesting. ********** Bristel in the yard out of the blue... You wanna know my wishes, mommy? Sure, honey. I wish for Trevy to read like a real person... I wish to never get another boo boo... and I wish for all the people in the universe to be nice to eachother. ********** Toby upon missing a shot after I came outside to watch him shooting hoops... You know mom...I think you jinx me. ********** Bristel during a recent bath... It would be great if we ha...

My advice? Eat something VERY chocolate-y... Read this post... And share your thoughts in the morning. Or whenever. Trevy's napping right now which means I have time...so now is good too! ::smile::