happy being trevy

"Go as far as you can see;  when you get there, you'll be able to see further ." -  Thomas Carlyle

Tuesdays are okay. Wednesdays are too. Thursdays are my errand day and are nice because Grams keeps the kids so I can do my running around solo.   I'm a fan of solo.   Who doesn't love Friday? Saturdays are sweet.  When they're lazy, anyway. And Sundays are usually restful and nice.  But Mondays are my favorite! And you're probably going to think I'm awful when I tell you why too!   Trevy doesn't have preschool on Mondays.  He's in a Tuesday - Friday half day program.  Which means he's at home all day on Mondays.  Before you start thinking how sweet it is that Trevy's at home day is my favorite, let me assure you.  That is not why!  And you're going to think I'm a terrible mom when I tell you why.  Or at least, I'll feel like a terrible mom.  Because Mommy Guilt finds me an easy target.  Also.  When I say things like I'm about to say I'll typically hear from at least once concerned frien...

 I like to try and focus on the happy things.  Because we have so much to happy about.  Considering.   But I also like to keep it real.  And the real story is... Trevy has been a bear .   Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!  And it sucks. Non-stop screaming.  All.  Day.  Long.  About everything.  He asks for chips.  We bring the wrong kind.  He says "this".  We can't decode what "this" means because it really is vague.  He melts into a 30 minute fit of rage.  He wants M&Ms.  We say no.  And then bear the wrath.  Non-stop screaming.  Outraged.  Screaming. There is no reasoning with him.  The pool of what he understands doesn't include reasoning. And it doesn't feel good to not want to be around your kid.  But seriously.  When is Winter Break over?   It's especially disappointing because we'd been enjoying a nice place recently....

Seriously.   It's not like I was trying to be all positive thinking.  Cause Lord knows...that's a whole other post.  Hint - I am not into positive thinking!  But I am into having a little fun every now and then.  Which is really what I was trying to do. Have a little fun.   A daily love post during the Month of Love seemed appropriate.  Plus, counting your blessings never hurt anyone.  Or so I thought...    No sooner had I clicked publish on my first love post...than Bristel's being diagnosed with pneumonia.   But I was not to be deterred!  It was just Bristel.  And she recovered quickly.  No need to stop the love.   Until the rest of us were systematically taken down by pneumonia too.  It's rare for me to be unable to muster energy to check my emails.  That's how sick I was.  If you sent me an email that went unresponded to.  Now you know why.  Just as I w...

You, your Seizure Boy, his home-based therapist, her clinician along with an intern and just arrived home from work daddy are all crammed into the 12x12 School/Therapy Room... all worried about the odd behavior of your Seizure Boy... Did he have a seizure?  Is this postictal?  Why did he suddenly get so tired and quiet?   Is he just being shy?  God...I wish he could just tell us what is wrong! While you're all discussing the various possibilities the phone rings.  Which you have to answer it because it's Dr. Ortho's secretary and you need to reschedule last week's missed appointment.  An appointment that the only way you would have canceled is if you were on your death bed.  Happens that you were.  So you take the call.   The room is now teeming with you, your Seizure Boy, his daddy, Miss. HBTherapySpecialist, her clinician, a doe eyed intern and Miss. Ortho Secretary on the phone... when suddenly your Seizure Boy (wh...

is really what I will be loving tomorrow...  I need to run to IKEA for some organizational items for my school (therapy if you're Trevy) room.  Yes, I'm one of those crazy homeschooling mommies.  Although at this time only Toby is my full time guinea pig student.  I've been reading through tons of other homeschooling mommy blogs this week and now I'm totally sold on the workbox system .  Which is why I need IKEA's Trofast system ASAP.  It's quite likely I'll go crazy and create a therapy version of the workbox system for Trevy too!  Which I'm sure will eventually make an appearance in my BackYard Therapy posts.  Anyway... IKEA is running a special this weekend where they'll reduce your bill the amount spent in their cafe.  Which to mean can only mean one thing... A field trip tomorrow is clearly meant to be!   

Trevy ate a slice... and asked for more !  Which I know might sound like run of the mill news.  But see...Trevy never ever not never eats fruit or veggies!  So for Trevy's mommy...this is really big news!

your neuro-typical, super adorable daughter tries to convince you to buy the newest and brightest must have board game for youngsters because... it'll be GREAT therapy for Trevy!

That I actually have the energy to post what I'm loving today!  Although no doctors have come out and said so.  I'm pretty sure our house was hit by H1N1.  Oink Oink.  One by one we systematically succumbed to chills, body aches and fevers.  Which over the course of a couple days magically became pneumonia.  Or a bronchitis pneumonia combo.  Or in Jonathan's case...some sort of "secondary infection".  We're not sure what that means.  But we're all antibiotic-ed up and feeling better.  Ish.  I'm also loving this heart-warming story about a boy and how his hemispherectomy 17 years ago is continuing to touch others lives today. 

Toby regarding a thought provoking school assignment -- I just can't get this, Mom. My brain is too discombobulated!  ********** Trevy:  paaaaaaaaaaaaaay - tandem-ed with the sign for play...therefore we understood he was saying "play" not "pay".   Me:  you're going to play at school, honey  Trevy:  oh - with such a hilariously disappointed tone that I swear he knew exactly what was being said! ********** I was apologizing to Bristel because my pony tail was a wee bit sloppy.  Allowing her long side parted bangs to fall into her eyes a little bit.  Don't worry, Mommy.  When my hair falls down like that, my name is Cris!  Says she while trying out a super model pose. ********** Me:  Ready to brush teeth, Trevy?  Trevy's response was to pause... bat his huge eyes... and blow a raspberry before proceeding to finish his run down the hall way.  ********** I tried a new recipe out the ...

That my doctor is almost within walking distance.    Because I really can't drive that far.  What with a fever ranging between 100 - 103.5 for the past four days!    Yesterday I was so sick I couldn't have driven myself to the doctors office if my life depended on it.  Which...I suppose...is why 911 exists.  Or Grams.  Who swooped in to rescue me yesterday by caring for the kids so I could wallow in my feverish sweat all day.  She's coming back for more today.  Only today I at least have just enough  umph to drive myself to the clinic!  Because it's almost within walking distance.  Which is what I'm loving today...   But not as much as I'm loving Grams.  Again.  Because she'll drop everything when I really need her...

To fully appreciate what I'm loving today I must start with what I'm totally NOT loving... Toby started with the body aches late last week.  I thought he was bluffing because he was fever free.  Until he wasn't.  And was instead, glassy eyed and moany.  Burning up.  Poor kid.   It's been like that since last Thursday.  Feeling okay for a few hours.  Feverish and moany again later until the Tylenol kicks in again.   Then it was my turn.  Everything ached.  And stole my sleep Saturday night.  In fact, I convinced myself in the wee hours of the morning that I would not be going to church.  But the Tylenol started working.  And I happened to be teaching a class for the kids.  So I sucked it up and went.  And felt decent most of the day until the fever returned last night.   Which gifted me with another fitful sleepless night. The idea of caring for Trevor while dragging my aching, f...

This is not just pictures of two impossibly adorable kids... This is a picture of two impossibly adorable kids... cozy-ed up together... watching Strawberry Shortcake... munching cheerios... and staying relatively peaceful and quiet on this lovely Saturday morning... For five minutes and counting... Here's hoping it lasts for at least five more!

Getting fashion advice from my dimple-icious SIX year old... whom I should add... has much more flamboyant taste than I.  ::smile::

Being wrapped up in a great big bear hug... Feeling warm and loved and safe... In spite of the morning breath, bed head and three kids later body...

your teeth are chattering under several layers but you have your child running around the (hovering just above) freezing house half nude because... he has Topomax (read:bright red) cheeks. Inability to sweat which can lead to heat stroke is just one of the many wonderfully fun side effects of one of the many medications I force feed (with love) my 3 1/2 year old son daily.

Six years ago today... after nine long months of waiting... I finally held in my arms... the most beautiful baby girl I could have imagined.  Who immediately wrapped herself up in my heart with the very first flash of a dimple.   And continues to amaze and surprise me daily with the beautiful, loving, compassionate, hilariously funny girl she is growing into!

I should have shared this yesterday.  Because that's when I heard back.  Have I mentioned how much I love that my Dr. Neuro will communicate via email?  Now I just need to work on her new Miss. Nurse.  Because that would be the total package! Anyway... His last labs had his platelet count dangerously low at just 67,000.  That's bleed out from a paper cut low.  Yesterday's labs were just slightly below normal (150,000 - 400,000) at 145,000.  Early December's were at 180,000.  So it still would seem we're trending downward.  Not good.  But for now...we stay on the meds that seem to be helping the most.